Amelia’s been through a lot of ups and downs over the past month or so, and I’ve been slacking and not updating as often as I should. After her second seizure, our doctor recommended we have an EEG (electronic brain activity scan) and meet with the pediatric neurologist. The EEG was not pleasant – they tried to sedate Amelia but she fought it so much she ended up being awake during the scan where you wear a scarf like thing over you head with 22 different wires into the cap. The results of the EEG seemed to show some type of abnormality on the right side of her brain. In discussing this with the neurologist this could mean that her seizures are not caused solely by the fevers, but she may have seizures that are just triggered when she’s sick, and they may occur at anytime. Based on the fact there’s no seizure history in either family, and she responds to stimuli normally, they thought there may have been a problem with the EEG. So now we have to go back for another EEG, plus an MRI. So there will be two more opportunities to sedate her and to have her be miserable during these tests.
OK – now the good news. Amelia started walking consistently the last week in July. She is really going now. She’s moving awfully fast for someone who just started walking. She’s really enjoying moving around – she’s been tearing into anything 2.5 ft or less in the house. She’s still eating like an offensive lineman, but not gaining much for weight. She loves playing in the water, but it’s really the splashing she loves the most. We’ve been challenged by the fact she doesn’t sleep in the car, but to make up for it she’s sleeping pretty well at night and getting better at taking naps. She loves going to the park in our backyard and throwing sand all around. That pretty much forces her way into the bath afterward, but she loves that too.
When she’s not hanging out at hospitals, she’s doing well. It’s just fun to see her smile as she chases around the room.
Eric's space 